Tag Archives: autoimmune disease
New Year – New Direction
New Year, the secular new year, the Gregorian calendar new year, not my new year, and yet – January 1 is a good marker in time. Judaism actually has four new years: the new year of the trees (Tu B’shvat … Continue reading
Posted in Uncategorized
Tagged autoimmune disease, jerusalem, Lupus Nephritis, microscopic microangeitis, new year, renal failure, SLE
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Work Has Begun
Yes I know I haven’t written anything since July. I don’t even want to write now – it’s just that I’m compelled to say something, anything. In that I might find menucha (hard to translate – like peace). Some statistics … Continue reading
Time to Start Again
For a while I thought I would start a new blog, under a new URL. My optimism about the lupus being in remission led me right into the oldest of traps. I was sucker punched. I ended up in the … Continue reading
Reaching for the Miraculous
Serious disease does something to our thought processes. If we were faced with investing in a new house or new car we’d do lots of investigation before handing over our money. We’d weed out the bogus from the real facts. … Continue reading
Posted in lupus, Lupus Nephritis, renal failure, Uncategorized
Tagged acute renal failure, autoimmune disease, autoimmune disorder, chronic disease, creatinine, Lupus Nephritis, microscopic microangeitis, miracle cure, rare disease, what your doctor may not tell you about Autoimmune disorders
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Summertime, and the Living is Easy
Denial. There, I’ve admitted it. Denial has me by the throat. My psyche is deep in the lazy summer. It’s a time to spend reading all afternoon because it’s too hot to go out and hang with my friends. Lallygagging … Continue reading
My Journey Begins
I’m having a hard time taking myself seriously. When I ended up in the hospital, it was clear that I was making life and death decisions, even if I didn’t know it. A year later I still face these decisions, … Continue reading
If It’s Tuesday…
A person on chemotherapy is immune compromised. A fever is one of the first signs of infection. Since the body’s immune system is suppressed, the person must get to the hospital before the infection runs rampant. Continue reading
Posted in chemotherapy, chronic disease, lupus, renal failure, support system
Tagged autoimmune disease, chemotherapy, facing death, Imuran, low hemoglobin, lupus, Lupus Nephritis, migraine, renal failure
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115,120,000,000 Moments
It’s been 25 weeks since things came down. There was never a thought in my head that I wouldn’t make it through this. If I had any clue that I could die, I mean really know in my gut that … Continue reading
When is it Time?
The air is still crystal clear from up here. I’ve gone through three weeks wondering when the smog is going to settle back in around my brain and my soul. I keep wondering when the air will become so rarefied … Continue reading
Top o’ the Mornin’ To Ya’
I’m on top of the world. Really. Yes, I know my voice is gravely and I’m moving slowly, but I feel like I’m on top of the world. After the news last week my stomach clinched into a knot, my … Continue reading
